HOW CAN ITP WARRIORS DEAL WITH CONFLICTING HEALTH INFORMATION?
As an ITP warrior, I do a lot of research so I can be a good steward of my health.  However, I sometimes come across conflicting information. One piece of research seems to answer our question…while another piece of research tells me the exact opposite! I feel caught in the middle….what am I supposed to do?
For example, we often get conflicting information about what may be “good” or “bad” for the platelets in our blood. 
TIP #1 – Always look (or ask) for research. We may have well-meaning family and friends who want to share informationthat they heard somewhere.  We want to trust our doctors. Our doctor may even be an expert in ITP (if there is such a thing, with ITP being so rare!) However, doctors are not typically experts in nutrition or food.  It is up to us to be come experts in…us!
TIP #2 – Beware of the statement “It lowers platelets”.  We need to understand the difference between platelet quantity and platelet quality.  Platelet count is the actual number that appears on our lab work. Platelet aggregation refers to the “stickiness” of the platelets. Many times we are told something will “lower the platelets”, when in fact, it may make the platelets less sticky.   Know the difference!  It will help you make an informed decision.
TIP #3 – Research both sides of the argument. You’re going to have to decide who to believe and whose advice you trust enough to follow. Whose information resonates with your personal philosophy of wellness? (It may even happen that your doctor stands on the side that you don’t agree with. I suppose that is a discussion for a different time…)
TIP #4 – Understand the risk-to-benefit ratio. Turmeric, ginger, garlic, oh my!  These foods have tremendous health benefits. SOME sources say they can effect platelet aggregation. (There are other sources that say the opposite!) You may decide the health benefits outweigh the possible risk...or not...  If you’re undecided, refer back to tip #3.
My point isn’t to tell you what is safe or recommended for your personal health. I encourage you to make that specific decision for yourself. However, my point is….make sure you look at the actual research on BOTH sides of an issue whenever you hear someone say, “That is bad (or good) for your health…” Also, it is Ok to disagree with your doctor.  For some support on how to partner with your health care provider, see my blog post WHO'S THE BOSS?
If you're an ITP warrior and we haven't connected yet, drop me a note! MSG ME!

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Meet Nina Cesena

 
Chronic illness STINKS!  A battle with autoimmune disease left me “immune compromised” after the loss of my spleen, which happens to be an integral part of our immune system.

I won the battle with autoimmune disease and got into remission…but my immune system was still thrashed! I fell unwell ALL. THE. TIME. I was a classroom teacher and a mom of school age kids. Every icky thing that went around seemed to find me. There were winters I forgot what it felt like to feel “well”.  I wondered what my future was going to be like….Was I going to be a victim of my immune system forever?
Then…I began to wonder if there were ways I could support my immune system naturally. I’m a skeptic. If I’m going to try something new, I need to know “how” and “why” it is going to work! I did a ton of research…and tried something I hadn’t tried before.

A few months went by…and I realized I had made it through an entire fall-winter season feeling WELL! That was 7 years ago!!

Now, I live my life confident in the power of my immune system. I don't worry that every germ is going to catch up with me. I don't fear NOT having a spleen!
 
I’ve learned so much since that first winter seven years ago! Chronic illness or a weakened immune system can make us feel out of control and even trapped! I’m on a mission to help others empower themselves to take control and gain freedom.

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