HOW CAN ITP WARRIORS DEAL WITH CONFLICTING HEALTH INFORMATION?
As an ITP warrior, I do a lot of research so I can be a good steward of my health.  However, I sometimes come across conflicting information. One piece of research seems to answer our question…while another piece of research tells me the exact opposite! I feel caught in the middle….what am I supposed to do?
For example, we often get conflicting information about what may be “good” or “bad” for the platelets in our blood. 
TIP #1 – Always look (or ask) for research. We may have well-meaning family and friends who want to share informationthat they heard somewhere.  We want to trust our doctors. Our doctor may even be an expert in ITP (if there is such a thing, with ITP being so rare!) However, doctors are not typically experts in nutrition or food.  It is up to us to be come experts in…us!
TIP #2 – Beware of the statement “It lowers platelets”.  We need to understand the difference between platelet quantity and platelet quality.  Platelet count is the actual number that appears on our lab work. Platelet aggregation refers to the “stickiness” of the platelets. Many times we are told something will “lower the platelets”, when in fact, it may make the platelets less sticky.   Know the difference!  It will help you make an informed decision.
TIP #3 – Research both sides of the argument. You’re going to have to decide who to believe and whose advice you trust enough to follow. Whose information resonates with your personal philosophy of wellness? (It may even happen that your doctor stands on the side that you don’t agree with. I suppose that is a discussion for a different time…)
TIP #4 – Understand the risk-to-benefit ratio. Turmeric, ginger, garlic, oh my!  These foods have tremendous health benefits. SOME sources say they can effect platelet aggregation. (There are other sources that say the opposite!) You may decide the health benefits outweigh the possible risk...or not...  If you’re undecided, refer back to tip #3.
My point isn’t to tell you what is safe or recommended for your personal health. I encourage you to make that specific decision for yourself. However, my point is….make sure you look at the actual research on BOTH sides of an issue whenever you hear someone say, “That is bad (or good) for your health…” Also, it is Ok to disagree with your doctor.  For some support on how to partner with your health care provider, see my blog post WHO'S THE BOSS?
If you're an ITP warrior and we haven't connected yet, drop me a note! MSG ME!

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Meet Nina Cesena

 

Hi, I’m Nina!

I'm an ITP warrior, author, wellness coach, and woman of faith who believes that a diagnosis doesn't have to define the rest of your story. 

My journey with immune thrombocytopenia (ITP) began in 2003 with a platelet count of just 2,000, years of treatments, and eventually the removal of my spleen. After years of battling autoimmune disease, I reached remission—but I also discovered that healing was about much more than simply getting a diagnosis behind me.

My own journey led me to dig deeper into nutrition, stress, gut health, reducing toxic load, targeted supplements, essential oils, mindset, and faith. I became passionate about understanding not just what we can do to support our bodies, but why it may matter.

Today, I share what I've learned with other ITP warriors and people navigating chronic illness, helping them discover practical, whole-person ways to support their health and well-being.

I don't believe wellness is about finding a magic answer or doing everything perfectly. And I don't believe that ITP has no known cure means there is nothing you can do.

There is hope. There are choices. There are things we can learn and ways we can care for ourselves along the journey.
Most importantly, I've learned that healing is a journey—and you don't have to walk it alone.

I'm here to help you find hope, take empowered steps, and discover what's possible for your own healing journey.


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